Medical advances have seen the life expectancy for Canadians with Down syndrome more than double over the past 40 years. The average life expectancy has risen to over age 60 today, up from 25 years of age in 1983. Many people with Down syndrome are now beginning to outlive their parents, and the responsibility for caregiving is increasingly being passed on to siblings. As their primary caregivers, parents often carry the knowledge about how to care for those with Down syndrome, creating a significant information gap when siblings take over.…
Read MoreCanadian Down Syndrome Society empowers parents to create “Care Instructions” for the next generation of caregivers
