October marks the start of NPC Awareness Month. Hopeformarian.org and the NPC community are launching the #NoPuckerChallenge to drive awareness of a fatal and rare genetic disorder called Niemann-Pick Type C (NPC). Greater awareness will bring scientists closer to a cure for children like 2-year old Marian McGlocklin. Marian was diagnosed with NPC at 18 months. Marian is in a fight for her life and receives a spinal tap every two weeks to stay alive until a cure is found. She is one of the youngest on a clinical trial…
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