Merck, a leading science and technology company, joins the global multiple sclerosis (MS) community in recognition of World MS Day, an initiative created by the Multiple Sclerosis International Federation (MSIF) to raise awareness of the 2.3 million people worldwide living with this challenging disease. In support of this year’s World MS Day theme, #MyInvisibleMS, Merck is making MS visible through a variety of initiatives aimed at shining a light on the hidden symptoms of MS. These invisible symptoms, which include visual problems, fatigue, pain and emotional changesi, can vary between patients and often add to the stigma and emotional burden of the disease.
Merck has partnered with people living with MS and their carers to create art that visually expresses the invisible effects of MS. The company has created vibrant pop-up art galleries which will display the creations in 15 different countries. These creative efforts are aimed at educating viewers on the invisible symptoms of MS and the ways they impact quality of life.
“People around us don’t see our invisible symptoms, but that doesn’t mean they don’t exist. The artwork is just a friendly reminder to everyone that even though we don’t look “sick”, MS is still a chronic condition we have to deal with every day,” said Stanca P., living with MS and the creator of one of the art pieces.
Merck also launched the webpage MSonyourterms.com for patients, carers and the general public. The resource focuses on how patients can live with MS without being defined by it, and contains patient testimonials, along with questions that reflect everyday situations and treatment considerations. A link to see the artwork from the Merck pop-up galleries can also be found on the new website
To support MSIF’s Informed Decision-Making Programme, Merck will donate €1 for every post shared (up to €50,000) on social media by members of the public including combined use of the hashtags #MSInsideOut and #MyInvisibleMS until June 8. The Informed Decision-Making Programme supports several initiatives of MS patient groups around the world. These initiatives aim to provide reliable, accessible and up-to-date information, so that people know they are making the best decision for their MS and their lives.
“Merck is deeply committed to MS and better understanding both the visible and unseen ways the disease can affect patients,” said Andrew Paterson, Global Head of Neurology & Immunology at Merck. “We are inspired by the patients and carers who have advanced this understanding and who made their MS symptoms visible by sharing their experience.”
As part of the company`s commitment to better understand MS, Merck announced the documentary “Seeing MS from the Inside Out” on World MS Day last year. The documentary premiered at ECTRIMS 2018 and was recently screened at the 2019 Indy Film Fest (May 2-12) at the Indianapolis Museum of Art, Newfields, USA, along with the 2019 Caorle Film Festival in Venice, Italy (May 9-11). The film was also accepted for the Beach Cities Inspirational Film Festival (2020) in California, USA. A link to see the full documentary is available on MSonyourterms.com.
Merck employees around the world are recognising World MS Day today and beyond through a variety of activities, including showcasing artwork from the gallery in offices across the globe.